Introduction About the Program

Why has this site been set up?

The reason that this site has been set up for mothers like you is to share information which you may not otherwise access. We know that many mothers of a child with a disability have limited time and have restrictions on attending workshops and opportunities in the community that may assist them to understand how best to address their own well-being. It is true that not enough is available to assist mothers like you to address your own health and well-being needs. Therefore we are providing you with some information relevant to many mothers like you, in one website. We hope that you find the information useful and helpful.

Mothers are very important people.

You are a very important person.

References

There are some research papers that informed the development of this site. We will have more to follow as we evaluate the program and what mothers like you find useful. It is not necessary to buy or read these articles. However we are sharing the list for your information. Much of the research described below has been instrumental in the design of the Healthy Mothers Healthy Families program. Below is a list of current available research that underpins HMHF:

  1. Bourke-Taylor, H.M., Leo, M. & Tirlea, L. Health, Wellbeing and Empowerment E-workshops for Mothers of Children with Disabilities: A Non-randomised Comparison Study. J Autism Dev Disord (2024). https://doi.org/10.1007/s10803-024-06287-5
  2. Bourke-Taylor, H. M., Leo, M., Harris, V., and Tirlea, L. (2023) Health Promoting Activity Coaching: Pilot non-randomized control trial determined feasibility for mothers of children with disability. American Journal of Occupational Therapy, 77(3), 7703205140. https://doi.org/10.5014/ajot.2023.050116
  3. Bourke-Taylor, H. M., Joyce, K. S., & Tirlea, L. (2022). Initial development and evaluation of the My Family’s Accessibility and Community Engagement (MyFACE) tool for families of children with disabilities. American Journal of Occupational Therapy, 76, 7604205150.
  4. Harris, V., Bourke-Taylor, H. M., & Leo, M. (2022). Healthy Mothers Healthy Families, Health Promoting Activity Coaching for mothers of children with a disability: Exploring mothers' perspectives of programme feasibility. Australian Occupational Therapy Journal, 1– 14.
  5. Bourke-Taylor, H.M., Cotter, C., Joyce, K., Reddihough, D. Brown, T. (2022) Fathers of children with a disability: Health, work and family life issues. Disability and Rehabilitation 44(16), 4441-4451
  6. Bourke-Taylor, H.M., Joyce, K., Tirlea, L. (2022) Mental health and health behaviour changes for mothers of children with a disability: effectiveness of a health and wellbeing workshop, Journal of Autism and Developmental Disorders, 52(2), 508-521.
  7. Sim, S. S., Bourke-Taylor, H., Fossey, E., & Yu, M. L. (2021). The everyday occupations of East Asian mothers who have children with disabilities: A scoping review. Research in Developmental Disabilities, 110, 103849. https://doi.org/10.1016/j.ridd...
  8. Bourke-Taylor, H.M., Lee, D.C.A., Tirlea, L., Joyce, K., Haines, T. (2021) Support for the mental health of mothers of children with a disability: Systematic review, meta-analysis and description of interventions. Journal of Autism and Developmental Disorders 51(10),3690
  9. Bourke-Taylor, H.M., Grzegorczyn, S., Joyce, K. (2021) Peer mentor training: Pathway to competency for facilitators of Healthy Mothers Healthy Families. Child, Care, Health and Development 47(5), 575–587.
  10. Bourke-Taylor, H.M., Joyce, K., Tirlea, L. (2021) Further psychometric evaluation of the My Family’s Accessibility and Community Engagement (My FACE) tool: Mothers’ ratings of perceptions of community accessibility and engagement for their child with disabilities. Research in Developmental Disabilities, 114(7), 103955
  11. Bourke-Taylor, H. M., Joyce, K. S., Grzegorczyn, S., & Tirlea, L. (2021). Profile of Mothers of Children with a Disability Who Seek Support for Mental Health and Wellbeing. Journal of Autism and Developmental Disorders, 52(9), 3800-3813,
  12. Ø Bourke-Taylor, H.M., Joyce, K., Tirlea, L., Morgan, P., Reddihough, D. (2021) Maternal and child factors associated with the health-promoting behaviours of mothers of children with a developmental disability. Research in Developmental Disabilities, 118(11), 104069,
  13. Bourke-Taylor, H.M., Jane, F.M., Peat, J. (2019) Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability. Journal of Autism and Developmental Disorders, 49(3), 935-949. doi:10.1007/s10803-018-3789-1
  14. Farrugia, T., Hewitt, A., Bourke-Taylor, H.M., Joosten, A. (2018) The impact of carer status on participation in healthy activity and self-reported health among Australian women over 50 years, Australian Occupational Therapy Journal, 66(1), 23-32. DOI: 10.1111/1440-1630.12491
  15. Bourke-Taylor, H.M., Jane, F.M. (2018) Mothers’ Experiences of a Women’s Health and Empowerment Program for Mothers of a Child with a Disability. Journal of Autism and Developmental Disorders. 48(6), pp 2174–2186, doi: 0.1007/s10803-018-3486-0
  16. Bourke-Taylor, H.M., Cordier, R., Pallant, J. (2018) Child’s Challenging Behavior Scale Version 2: Criterion validity with Child Behavior Checklist and Strengths and Difficulties Questionnaire with young typically developing children. American Journal of Occupational Therapy, 72(1) e-pages.
  17. Bourke-Taylor, H.M. (2017) Occupational therapists working with children and families: Two decades of progress. Australian Occupational Therapy Journal, Special Issue. 64 (Suppl. 1), 11–13.
  18. Joyce, K., Bourke-Taylor, H.M., Wilkes-Gillan, S. (2017) Validity of the Assistance to Participate Scale with parents of typically developing Australian children aged 3-8 years. Australian Occupational Therapy Journal,64(5), 381-390.
  19. Muskett, R., Bourke-Taylor, H.M., Hewitt, A. (2017) Intrarater reliability of the Health Promoting Activities Scale. American Journal of Occupational Therapy, 71(4), 7104190010p1-7104190010p8
  20. Bourke-Taylor, H.M., Pallant, J., Cordier, R. (2017) Child’s Challenging Behaviour Scale version 2: Psychometric evaluation with mothers of typically developing young children. American Journal of Occupational Therapy, 71(4) pages unknown.
  21. Bourke-Taylor, H.M. (2016) Editorial. Supporting the occupational participation of Australia’s carers. Australian Occupational Therapy Journal, 63(3), 141-142.
  22. Bourke-Taylor, H., Cotter, C., Stephan, R. (2015) Complementary, alternative and mainstream service use among families with young children with cerebral palsy: Costs and family sacrifice to access choices. Physical and Occupational Therapy in Pediatrics, 35(3), 311-325.
  23. Bourke-Taylor, H, Lalor, A., Farnworth, L., Pallant, J., Knightbridge, L., McLelland, G. (2015). Investigation of the self reported health and health related behaviours of Victorian mothers of school aged children. Australian Journal of Primary Health, 21(1), 66-73.
  24. Bourke-Taylor H.M., Lalor, A., Farnworth, L., Pallant, J. (2014) Further validation of the Health Promoting Activities Scale with mothers of typically developing children. Australian Occupational Therapy Journal, 61(5), 308-315.
  25. Bourke-Taylor, H., Pallant, J., Law, M., & Howie, L. (2014). Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities. Journal of Paediatrics and Child Health,49(9), 775–782.
  26. Bourke-Taylor, H., Pallant, J., Law, M., (2014). Update on the Child’s Challenging Behaviour Scale following evaluation using rasch analysis.Child: Care, Health and Development, 40(2), 242-249.
  27. Bourke-Taylor, H., Pallant, J. (2013). The Assistance to Participate Scale to measure play and leisure support for children with developmental disability: Update following rasch analysis. Child: Care, Health and Development,39(4),544-551.
  28. Bourke-Taylor, H., Cotter, C., Stephan, R. (2013), Young children with cerebral palsy: families self reported equipment needs and out of pocket expenditure. Child: Care, Health and Development, 40(5), 654-662.
  29. Bourke-Taylor, H., Pallant, J., Law, M., & Howie, L. (2012). Predicting mental health among mothers of school-aged children with developmental disabilities: The relative contribution of child, maternal and environmental factors. Research in Developmental Disability, 33(6), 1732-1740.
  30. Bourke-Taylor. H.M., Law, M., Howie, L. Pallant, J.F. (2012) Development of the Health Promoting Activities Scale (HPAS) for measurement of mother’s participation in leisure. American Journal of Occupational Therapy, 66(1), e1-e10.
  31. Bourke-Taylor. H.M., Howie, L. Law, M., Pallant, J.F. (2012) Self reported mental health of mothers with a school aged child with a disability in Victoria: a mixed method study. Journal of Paediatrics and Child Health. 48(2), 153-159.
  32. Bourke-Taylor. H.M., Howie, L., Law, M., (2011) The preclusion of mothers of school aged children with disabilities from paid work and relationship to health related quality of life. Journal of Intellectual Disability Research, 55(5). 511-520.
  33. Bourke-Taylor, H. M. (2010). Understanding the family's perspective: Parenting a child with cerebral palsy. In K. Dodd, C. Imms & N. Taylor (Eds.), Physiotherapy and occupational therapy for people with cerebral palsy: A problem-based approach to assessment and management ( pp 31-39). London, UK: Mac Keith Press.
  34. Bourke-Taylor, H. M., Howie, L., & Law, M. (2010). Impact of caring for a school aged child with a disability: Understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57(2), 127-136.
  35. Bourke-Taylor, H. M., Law, M., Howie, L., & Pallant, J. F. (2010). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities. Child: Care, Health and Development, 36(4), 491-498.
  36. Bourke-Taylor, H. M., Law, M., Howie, L., & Pallant, J. F. (2009). Development of the Assistance to Participate Scale (APS) for children's play and leisure activities. Child: Care, Health and Development, 35(5), 738-745.
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Entry last updated 04 July, 2024